Taylor will have a visit to the Neurosurgeon this Thursday. This is a routine visit to continue checking how her head is healing from the surgery(removing of tumor)...important note is that if you ever need nerosurgery Dr. Peu(not sure on spelling) is a definite pick I would recommend. The Doctor should be named McDreamy as he is rather cute! Hope Mindy and Landon grab a photo of the good Doctor for Taylor (or auntie.LOL).
Next Tuesday Oct. 7, 2008 Taylor has her MRI and possibly surgery for the tubes. The hope is that if they get it all done Tuesday that Wednesday they can start chemo. So rememeber, keep sending out all your loving "vibes" and prayers to Taylor.
Mindy reports she is quite the "hungry hippo" and it all seems to be coming back out rather effectively (if you know what I mean).
Tuesday, September 30, 2008
Sunday, September 28, 2008
Hmmm maybe I should say who the heck I am
Hello,
I totally forgot that a lot of people may be wondering who I am. I am Mindy's sister Leah. Or some may say "Miranda" (sorry Mindy I know you don't like everyone knowing your covert ID LOL).
I have already received calls to help out. *(**old friends)are willing to help with any shopping, Constance Thiessen (sorry Constance if you are married and go by your married name) is bringing stew, and Landon's grannie Marie and Aunt Linda are signed up for TV dinners, bedding they are lovingly making and donation. Grannie Marie is a bit under the weather, but when she is back up and running would like to spend a week helping Mindy out at home. Also Danielle has volunteered to help with dog sitting and preparing some meals. Awesome! Thanks everyone.
So Linda Thiessen mentioned a great thing I will look in to, but I know some that check this may have the information so I will ask here. How does tax deducting for gas/mileage for having to drive to the hospital, etc due to illness work? Also I would like to set donations up possibly as a "charity" so that we could offer tax deduction if possible. Does anyone know anything about this? Why am I worried about money, etc? Because Landon may have to work in Ponoka for 6 months and that would mean when chemo occurs it is "days off" etc...costs will rise. Mindy will also then be left largely alone to deal with all of this; therefore why I suggest helping clean, laundry, shopping, etc.
Okay I sign off now and will be back later with updates.
Leah
Saturday, September 27, 2008
What Can You Do To Help:
Hello Everyone,
I know Taylor Thiessen has received so much love and prayers throughout these first 17 days of her life. Taylor has been diagnosed with a rare brain cancer that also effects the spinal area. I am not "fully" educated on all the details as of yet, but when I find out I will post. So Taylor will begin by receiving this first year chemo treatment every 2 weeks, followed by MRI's every 6-8 weeks. It will be tough and we need to share all our strength and positive energy with Mindy, Landon & Taylor in what comes this year and possibly longer.
My idea of helping is to try and take some of the workload and stresses everyday life will have on Mindy and Landon so that they may put all energy in to Taylor.
I know how many of you want to help, so I am going to try and co-ordinate this for Mindy and Landon. Anyone, who wants to be responsible for anything I might put below is welcome to contact me via the blog, e-mail or phone. I will let my profile come up in information.
Okay I do need to figure out how to get a calendar or something on here to organize better but bear with me. Here are some idea's to help, please add anything you come up with:
1. Food-it is difficult to make food and deal with baby, etc. I hope I can get some volunteers to continue to supply cooked meals for them that can be frozen or eaten right away. It is important that they are eating healthy as Mindy is breast-feeding and they MUST NOT GET SICK as Taylor cannot be exposed to illness during treatment especially when her platelets are down.
2. Shopping-they will more than likely not have a lot of time to do
shopping so if people could pick stuff up for them and take it to them this would be awesome.
3. Laundry- we all know laundry is a must, especially with a baby. Not sure if she will have vomiting etc due to treatment and therefore will need to be changed regularly as well as bedding
4. Cleaning House-I would like to try to minimum get her house cleaned top to bottom every week. A few people can make this happen fast so we do not inconvenience them as well as keep the area clean for Taylor who will need a clean environment
5. Dog Sitting-at times they may need care for the dogs. We will try and make sure this does not happen, but good to know if we have a "plan b"
6. Extra: clothing, bedding, diapers, wipes, etc for Taylor as she may get sick a lot and then laundry becomes a huge issue. More of this stuff means they can just leave laundry if they have a lot of extra supplies.
7. Money-we may need to try and donate to a "slush" fund so that if Landon needs to take time, or if Mindy cannot return to work immediately they have some extra cash. My idea is that if we start now when it is probably not as big an issue that we can slowly develop a sizable amount in case of dire circumstances. If it is not used by them they can convert it to her education fund. People do not need to donate a lot, but more people donating small amounts adds up quickly. I don't want this to be "money grubbing", but being prepared I feel it necessary to consider economics.
8. Donate Blood or money to Stollery- This is more an aside, but Taylor will probably get transfusions and the only way these beautiful children, babies, and adults survive is by people who donate...
Okay so please let me know
Leah Sacha
e-mail: DorcasL@telus.net
work: Leah.Sacha@btps.ca
Hm: (780)467-9988
cell: (780)695-5550
Address: 707 Wellington Lane Sherwood Park (in case you need to drop something off for me to take to Mindy)
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